Clinical Engagement Liaison

Summary

Join Ultragenyx as a Clinical Engagement Liaison and make a difference in the lives of rare disease patients. You will educate patients and healthcare providers on Long Chain Fatty Acid Oxidation Disorder (LC-FAOD) and DOJOLVI therapy. Responsibilities include patient and caregiver education, support for treatment adherence, collaboration with healthcare teams, and coordination with internal teams. This field-based role requires significant travel. The ideal candidate possesses extensive patient engagement and clinical educator experience, a relevant degree, and strong emotional resilience. Ultragenyx offers a competitive salary, annual bonus, equity incentives, and a comprehensive benefits package.

Requirements

• 5-7 years of prior patient engagement experience required
• Ability to travel 80% of the time
• Individual must possess and portray strong emotional resilience, and calm demeanor under stress during difficult patient or medical calls or face-to-face meetings
• Strong morality, ethics, and respect for confidentiality; including commitment to providing the recommendations from the clinic only and not providing health advice that is not approved by the clinic or on medication label

Responsibilities

• Meet with patients and caregivers to educate on most effective methods and strategies for patient to understand and adhere to the therapy prescribed by the clinic, including dosing and titration
• Support ongoing treatment adherence through personalized counseling and education
• Engage and meet with the treating HCP/Registered Dietician and other members of the patient’s care team to implement an ongoing care plan to support patients that, among other things, mitigates side effects and improves compliance with therapy to improve health outcomes
• Coordinate with other members of the Ultragenyx Patient Engagement Team as well as other Cross-Functional partners to ensure access
• Attend relevant conferences, internal meetings/training, and maintain expertise encompassing all aspects of LC-FAOD disease management

Preferred Qualifications

• 3-5 years clinical educator/care coordinator experience preferred
• BA/BS in the Life Sciences, Communications or Healthcare Management related degree preferred
• Healthcare degree Registered Dietician or Nursing (NP/RN/BSN) preferred

Benefits

• Generous vacation time and public holidays observed by the company
• Volunteer days
• Long term incentive and Employee stock purchase plans or equivalent offerings
• Employee wellbeing benefits
• Fitness reimbursement
• Tuition sponsoring
• Professional development plans
• Annual bonus
• Equity incentives