Managing Director, Advocacy

Summary

Join The ALS Association as their Managing Director of Advocacy and work to make ALS a livable disease by 2030. Collaborate with internal and external stakeholders to develop and implement a comprehensive state policy and advocacy agenda. Work directly with state legislatures and agencies, educating managing directors on state policy efforts and developing grassroots action plans. Partner with other mission areas and Association teams to achieve advocacy goals. Represent the Association at conferences and manage outside counsel and lobbying needs. Cultivate trust with stakeholders and promote effective communication. Successfully manage state advocacy goals and activities, measuring and improving outcomes. This role requires a Bachelor's degree, 7-10 years of related experience, advocacy and state health policy experience, and proficiency in Microsoft Office and video conferencing platforms.

Requirements

• Bachelor's Degree (BA) from four-year college or university
• 7-10 years of related experience and/or training in a similar role, or equivalent combination of education and experience
• Advocacy and state health policy experience required, with specific knowledge of ALS and health insurance issues preferred
• Proficiency in Microsoft Outlook, Word, Excel and PowerPoint and video conferencing platforms required
• Excellent online research skills
• Ability to handle confidential matters with a high level of integrity
• Ability to travel up to 30% and work weekends or evenings on Association business as required

Responsibilities

• In collaboration with Vice President of State Policy and other internal and external Association stakeholders, develop and implement a comprehensive state policy and advocacy agenda that has a symbiotic relationship with organization’s federal agenda
• Work directly with state legislatures and state executive branch agencies. This includes working with key healthcare policy makers, including members of legislative committees with jurisdiction over healthcare, as well as the Departments of Insurance and other state agencies and executive departments tasked with overseeing state health care programs
• Educate Managing Directors on all state policy efforts. This includes the development of grassroots action plans that strategically engage advocates and volunteers to achieve desired policy outcomes. Provide support as needed
• Partner with other mission areas (research and care services) and other Association teams, including development and communications, to develop and execute the Association’s state advocacy goals
• Represent the Association at conferences such as the National Association of Insurance Commissioners (NAIC), the National Council of Insurance Legislators (NCOIL) and the National Conference of State Legislators (NCSL)
• Assess outside counsel and lobbying needs within each state and manage these resources appropriately
• Cultivate the trust and confidence of staff, trustees, volunteers, elected officials and staff, and other members of the ALS community
• Promote effective and efficient communication of Advocacy information to the entire ALS community and the media in collaboration with Communications
• Develop effective strategies and priorities that help make ALS livable, and reflects the concerns of the Trustees, people with ALS and the broader ALS community
• Successfully manage state advocacy goals and activities to meet or exceed annual objectives
• Measure, assess, and improve the state advocacy outcomes achieved

Benefits

• Healthcare benefits
• A 401(k) plan with employer match
• Short-term and long-term disability coverage
• Basic life insurance
• Well-being benefits
• Paid time off
• Several paid holidays