Director, Patient Advocacy

Summary

Join Ultragenyx and become a hero for rare disease patients! As Director of Patient Advocacy, you will lead global advocacy strategies, build relationships with patient groups, and ensure the patient voice is integrated throughout the drug development process. You will report to the Executive Director, Patient Advocacy, and collaborate with various cross-functional teams. This remote position offers a competitive salary, annual bonus, equity incentives, and a comprehensive benefits package. The ideal candidate possesses extensive experience in patient advocacy, strong communication skills, and a deep understanding of the pharmaceutical industry. Ultragenyx offers a supportive and inclusive work environment focused on employee growth and well-being.

Requirements

• 8+ years of industry experience and 5+ years of external engagement experience
• Excellent communications skills (including written and oral) and strong interpersonal skills that can build and progress relationships internally as well as externally
• Experience developing and managing annualized patient advocacy plans and budgets
• Solid understanding of drug development, regulatory, and commercial processes at a global level
• Knowledge of Legal, Regulatory, & Compliance guidelines for engaging patient advocacy communities
• Experience developing and executing patient advocacy strategy with tangible results that align corporate goals with community unmet needs

Responsibilities

• Develop and execute global patient advocacy strategy across different stages of asset development in key markets for Ultragenyx
• Implement strategies to drive disease awareness, clinical trial awareness, and support important regulatory milestones
• Build trustful relationships with patient advocacy groups and community leaders to ensure productive partnerships and alliance
• Develop Caregiver Leadership Councils and other forums to support corporate objectives and understand community unmet needs
• Identify opportunities and build strategic solutions and initiatives to address internal and external challenges
• Manage patient advocacy events and engage employees to advocate for the patient voice and experience
• Represent Ultragenyx at scientific conferences and forums to support partnerships and outcomes for patients
• Lead and execute communications plan with patient advocacy organizations, including the development of community letters, company updates, and presentation materials
• Build and maintain Patient Advocacy annual plan and budget in alignment with cross-functional colleagues
• Ensure compliant, ethical, and transparent stakeholder engagement and communication

Benefits

• Generous vacation time and public holidays observed by the company
• Volunteer days
• Long term incentive and Employee stock purchase plans or equivalent offerings
• Employee wellbeing benefits
• Fitness reimbursement
• Tuition sponsoring
• Professional development plans
• Annual bonus
• Equity incentives